{"id":38467,"date":"2011-03-09T12:05:31","date_gmt":"2011-03-09T20:05:31","guid":{"rendered":"http:\/\/blogs.discovermagazine.com\/gnxp\/?p=10252"},"modified":"2011-03-09T12:05:31","modified_gmt":"2011-03-09T20:05:31","slug":"your-genes-your-rights-%e2%80%93-fda%e2%80%99s-jeffrey-shuren-misleading-testimony-under-oath-2","status":"publish","type":"post","link":"https:\/\/www.razib.com\/wordpress\/2011\/03\/09\/your-genes-your-rights-%e2%80%93-fda%e2%80%99s-jeffrey-shuren-misleading-testimony-under-oath-2\/","title":{"rendered":"Your genes, your rights \u2013 FDA\u2019s Jeffrey Shuren misleading testimony under oath"},"content":{"rendered":"<p>Over the past few days I&#8217;ve been very disturbed&#8230;and angry. The reason is that I&#8217;ve been reading <a href=\"http:\/\/blogs.plos.org\/genomeboy\/2011\/03\/09\/making-movies\/\">Misha Angrist<\/a> and <a href=\"http:\/\/www.wired.com\/wiredscience\/2011\/03\/did-the-fdas-jeffrey-shuren-mislead-a-congressional-hearing\/\">Dr. Daniel MacArthur<\/a>. First, watch this video:<\/p>\n<\/p>\n<p><strong>In the <em>very near<\/em> future you may be forced to go through a &#8220;professional&#8221; to get access to <em>your<\/em> genetic information. Professionals who will<em> be well paid <\/em>to &#8220;interpret&#8221; a complex morass of statistical data which they barely comprehend.<\/strong> Let&#8217;s be real here: <strong>someone who regularly reads this blog (or Dr. Daniel MacArthur or Misha&#8217;s blog) knows much more about genomics than 99% of medical doctors.<\/strong> And yet someone reading this blog does not have the guild certification in the eyes of the government to &#8220;appropriately&#8221; understand <strong><em>their own<\/em><\/strong> genetic information. Someone reading this blog will have to pay, either out of pocket, or through insurance, someone else for access to<em> <\/em><strong><em>their own information<\/em>. <\/strong> Let me repeat: the government and professional guilds which exist to <a href=\"http:\/\/www.wired.com\/wiredscience\/2011\/02\/american-medical-association-you-cant-look-at-your-genome-without-our-supervision\/\">defend the financial interests of their members<\/a> are proposing that they arbitrate what you can know about <strong><em>your genome<\/em>.<\/strong> A friend with a background in genomics emailed me today: &#8220;If they succeed in ramming this through, then you will not be able to access your &#8230;<img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/feeds.feedburner.com\/~r\/GeneExpressionBlog\/~4\/XUw7zptL8Pk\" height=\"1\" width=\"1\"\/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Over the past few days I&#8217;ve been very disturbed&#8230;and angry. The reason is that I&#8217;ve been reading Misha Angrist and Dr. Daniel MacArthur. First, watch this video:<\/p>\n<p>In the very near future you may be forced to go through a &#8220;profess&#8230;<\/p>\n","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[157,1175,4,82,1176,625],"tags":[],"class_list":["post-38467","post","type-post","status-publish","format-standard","hentry","category-23andme","category-fda","category-genetics","category-genomics","category-jeffrey-shuren","category-select-post"],"_links":{"self":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/38467","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/comments?post=38467"}],"version-history":[{"count":13,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/38467\/revisions"}],"predecessor-version":[{"id":38868,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/38467\/revisions\/38868"}],"wp:attachment":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/media?parent=38467"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/categories?post=38467"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/tags?post=38467"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}