{"id":47419,"date":"2011-10-12T08:49:50","date_gmt":"2011-10-12T16:49:50","guid":{"rendered":"http:\/\/blogs.discovermagazine.com\/gnxp\/?p=14129"},"modified":"2011-10-12T08:49:50","modified_gmt":"2011-10-12T16:49:50","slug":"is-publishing-your-genome-unethical","status":"publish","type":"post","link":"https:\/\/www.razib.com\/wordpress\/2011\/10\/12\/is-publishing-your-genome-unethical\/","title":{"rendered":"Is publishing your genome unethical?"},"content":{"rendered":"<p><a href=\"http:\/\/sandwalk.blogspot.com\/2011\/10\/who-owns-information-in-your-genome.html\">Larry Moran<\/a> thinks that I <i>had<\/i> to ask my parents and siblings for permission before publishing my genotype. Interestingly, most of his readers seems to disagree with Larry on this, so I won&#8217;t offer my own response in any detail. They&#8217;re handling it well enough. I would like to add though that obviously this isn&#8217;t a either\/or proposition. <i>If<\/i> my family had a history of a particular genetic disease which was well characterized in terms of causative alleles I might not have published my genotype. As it is, we don&#8217;t. So I didn&#8217;t see much of a downside. I would also add that in my case <b>It wasn&#8217;t possible to have genuine consent in the first place.<\/b> My mother isn&#8217;t much into science, and we don&#8217;t share a common first language. There&#8217;s really no way that I could have gotten substantive consent, insofar as my mother understood what I was doing.<\/p>\n<p>More broadly though I think it is useful to broach this question and think about it. People do have social responsibilities by and large, and we&#8217;re embedded in a broader fabric. This isn&#8217;t true in all cases, some people have such horrible relationships with their families (e.g., victims of abuse) that it&#8217;s obviously ridiculous to wonder if they should ask their family for consent.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Larry Moran thinks that I had to ask my parents and siblings for permission before publishing my genotype. Interestingly, most of his readers seems to disagree with Larry on this, so I won&#8217;t offer my own response in any detail. They&#8217;re handling it well enough. I would like to add though that obviously this isn&#8217;t [&#8230;]<\/p>\n","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,360,1],"tags":[],"class_list":["post-47419","post","type-post","status-publish","format-standard","hentry","category-culture","category-personal-genomics","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/47419","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/comments?post=47419"}],"version-history":[{"count":0,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/47419\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/media?parent=47419"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/categories?post=47419"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/tags?post=47419"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}