{"id":74811,"date":"2012-11-05T11:46:53","date_gmt":"2012-11-05T19:46:53","guid":{"rendered":"http:\/\/blogs.discovermagazine.com\/gnxp\/?p=19010"},"modified":"2012-11-05T11:46:53","modified_gmt":"2012-11-05T19:46:53","slug":"it-takes-a-village-and-guidelines","status":"publish","type":"post","link":"https:\/\/www.razib.com\/wordpress\/2012\/11\/05\/it-takes-a-village-and-guidelines\/","title":{"rendered":"It takes a village, and guidelines"},"content":{"rendered":"<p>A week ago I <a href=\"http:\/\/blogs.discovermagazine.com\/gnxp\/2012\/10\/doctors-are-apparently-gods-get-used-to-it\/\">posted on a rather scary case<\/a> of medical doctors withholding information from a family because they felt that it was in the best interests of the family. I objected mostly because I don&#8217;t have a good feeling about this sort of paternalism. <a href=\"http:\/\/thednaexchange.com\/2012\/11\/05\/time-magazine-is-raising-questions-about-genetic-testing-for-minors-do-genetic-counselors-have-any-answers-to-give-them\/\">Laura Hercher has a follow up<\/a>. She&#8217;s not offering just her opinion, but she actually made some calls to people who were involved in the case. From what I can gather in her post the issue that triggered this outrage (in my opinion, it&#8217;s an outrage) is that <strong>for these particular tests informed consent was simply not mandatory.<\/strong> Since they didn&#8217;t have the consent <em>a priori<\/em>, the doctors had to go with their judgement.<\/p>\n<p>The reality here is that there isn&#8217;t a good solution. That&#8217;s because we&#8217;re not talking about science, <strong>we&#8217;re talking about values.<\/strong> The behavior of the medical doctors, withholding information which has serious life consequences, is still objectionable and unacceptable to me. But that&#8217;s <strong>me.<\/strong> I have a strong bias toward more information, and from all the social science data I&#8217;ve seen most people do too. And yet not everyone. Doctors are not mind readers, and they couldn&#8217;t consult the &#8230;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>A week ago I posted on a rather scary case of medical doctors withholding information from a family because they felt that it was in the best interests of the family. I objected mostly because I don&#8217;t have a good feeling about this sort of patern&#8230;<\/p>\n","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[360],"tags":[],"class_list":["post-74811","post","type-post","status-publish","format-standard","hentry","category-personal-genomics"],"_links":{"self":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/74811","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/comments?post=74811"}],"version-history":[{"count":0,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/posts\/74811\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/media?parent=74811"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/categories?post=74811"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.razib.com\/wordpress\/wp-json\/wp\/v2\/tags?post=74811"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}